Jeff has officially been discharged from NIH today....YEA!!!
He will have to have blood tests every Monday and Thursday as they monitor his white blood count and liver profiles. We'll be back at NIH on 3/16 for an MRI and CT scan of the liver with a subsequent clinic visit the following day. After our clinic visit on 3/17, we will know when/if Jeff will have the second procedure. They are also planning on stopping the night time IV beginning tomorrow night but then Jeff will have to get up at 2 a.m. for a snack. Dr. Drennan explained that Jeff's insulin was 19 this morning (within normal range) and it was 198 when we first arrived. They don't want to get your hopes up...but either the PHP procedure or the diazoxide is helping.....whew!!
Now we just need to work on the low grade fever, loss of appetite, and low energy levels and things will be somewhat normal again. They have checked Jeff's blood and there are no signs of infection so he either has a touch of the flu or symptoms from the chemotherapy. We will also need to follow up with our Endocrinologist at Bethesda to find out why the Lutenizing hormone is low....but things are looking good for the first time in weeks.
I will continue to update the blog but probably not more than once or twice a week. Feel free to continue to post your comments and/or questions. We have loved reading them all and thank you all for your support through these difficult times.
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14 comments:
Your news of today is such a blessing! I am so happy Jeff is doing much better and going home. I'm sure he will be happy to be home with the family. Please keep us posted and ask Jeff to call once he is able to.
Love, The Fort Family
Yahoo Cuz!
Great news! Now all we have to is fatten you up with some good food. We do not want to start calling you "Nibbles" again! :-)
I am sure that once you are in your home surrounded by "Phil and Lil" and all the chaos that goes with teenagers , you will feel much better! I am sure Linda is also looking forward to sleeping in her own bed. Linda you are a remarkable woman! I am so happy for Jeff to have someone like you in his life! Before I forget, I want to thank you for keeping us updated with Jeff and your journey.
Remember take one day at a time and keep smiling!
Have a good trip home!
Talk to you soon!
Love
Kathy
PS Aunty Evelyn called the house other night to check up on you and talked to Bradley. I am sure she will be calling again soon!
One more technical question, why is the posting time off on these blogs???
Yea!! Im glad you are going home..Im sure that will make you feel much better(-:
Linda, thank you soo much for keeping all of us in the loop!
Hope to talk to you soon.
Love you,
Kerri
Jeff and Family,
Great news, keep up the fight. We are all behind you. Broke back mountain.... man what were you thinking, must have been the radiation......
Linda, stay strong and thanks for setting this up. Helps us give Jeff and your family the support you need.
Scott and Anna
Hey Jeff and Linda
Congratulations and great news. Made my day and made the week. The prayers will continue and you continue to get better and stay strong. I will email again soon as I can.
Love
Your brother Jim
Jeff, I just heard about what was happening. I'm glad things are looking up for you. I'll be leaving the area for awhile, but I'll be checking in every now and then to see how you are doing. Take care brother.
Doug Ferm & family
Jeff great news for today. I just found out about your site today!! I just wanted you to know that Tina and I are praying for you and if there is anything we can do don't hestitate to call. We Love you man!!
Love
Bear and Tina
!!!!!! Thank God for good news. We will check in when we can on Jeff's progress. You're the best thing he's got on his side of this battle, Linda.
Love From Joe & Rachel
So, Rachel and I read through the entire blog from start to finish, and she turns to me and says, "No more beer drinking, Mister." To which my reply was,
"Yeah, right." Hard to believe YOU have angered the beer gods somehow.
Be Well, Jeffie...
Joe
Jeff & Linda,
I just heard about what has being going on with you folks. I am sorry to see that this has happened to such good people! I am glad to hear however that things are moving in the right direction for you all. My thoughts are with you guys. My best to you and your family.
Scott Paules
Jeff,
Talked to Jack Graham earlier today and he told me about your blog. Just wanted to say hello, and to let you know that you and your family are in my thoughts and prayers, shipmate...
Shawn Hankins
Jeff,
Glad to hear that you are going home. I know how important home is to you after our discussions about you retiring. It was always nice knowing that Senor Chief Jeff had the answer or would get the answer. Always taking care of somebody. Now, my friend, please take care of yourself. Our prayers our with you. Sam Solomon
Dear Jeff, Linda & Kids,
You are all in my thoughts and prayers every single day and I will not stop praying until Jeff is rid of "the beast" that is trying to invade his body! Jeff & Linda, you are two of the strongest people that I know and I respsect you both so much. Please hang in there and if you ever need to talk, I am there for you!
P.S. Jeff, when you are feeling better, I will bring you a batch of delicious chocolate chip cookies (your favorite)....
Dear Jeff, Linda & Kids,
You are all in my thoughts and prayers every single day and I will not stop praying until Jeff is rid of "the beast" that is trying to invade his body! Jeff & Linda, you are two of the strongest people that I know and I respect you both so much. Please hang in there and if you ever need to talk, I am there for you!
P.S. Jeff, when you are feeling better, I will bring you a batch of delicious chocolate chip cookies (your favorite)....
Love,
Donna & Tony Gray
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